Participate In Research
Many opportunities are available for families to participate in autism research. You can join a clinical trial, enroll in a research study, contribute to our rich genetic database or participate online by adding your family information to a research database. Nearly 90 percent of children with cancer are enrolled in clinical trials--contrasted with only 5 percent of children with autism. Your participation can make a difference in the lives of all who struggle with autism.
Also please see Autism Speaks Participant’s Guide to Autism Drug Research.
For more information about Autism Speaks or Autism Speaks Canada research opportunities please contact firstname.lastname@example.org
Researchers at the University of New Brunswick in Fredericton, Canada are interested in your job experiences and job satisfaction. We are interested in all types of jobs including sheltered workshops, supported employment, and competitive employment. To participate you must have autism (autism, Asperger’s, PDD-NOS), be working or have worked in the past (sheltered, supported, or competitive), and be at least 21 years of age. For more information go to https://survey.psyc.unb.ca/ASD-Employment-Consent.aspx or contact the investigator at email@example.com. Visiting the website does not obligate you to participate. $15.00 CAD for completion. This study is being conducted by Dr. Barbara D’Entremont firstname.lastname@example.org.
Brief Summary of Study’s Purpose:
Most autistic adults are unemployed or under-employed (Hendrics, 2010) and tend to hold menial, low paying jobs (Lounds Taylor et al., 2015). Little is known about their job satisfaction; yet job satisfaction is linked to overall life satisfaction (Lorenz, Frischling, Cuadros, & Heinitz, 2016). The current research will determine: 1) how satisfied autistic adults are with their employment; 2) whether individual characteristics, self-efficacy and work conditions predict autistic adult’s job satisfaction; 3) whether autistic adults whose level of employment (i.e., full-time, part-time, unemployed) matches their goals report higher life satisfaction than those whose levels of employment do not match their goals; and 4) whether higher levels of job satisfaction relate to higher life satisfaction.
CAMH is conducting a research project evaluating Acceptance & Commitment Therapy (ACT) for parents of children, youth, or adults with autism.
Kids Brain Health Network (formerly NeuroDevNet) is conducting an environmental scan with diverse stakeholders in order to inform future research directions, based on the needs and challenges experienced by parents of children neurodevelopmental conditions. Click the link to get more information and take the survey.
Family Participation in Research is designed to connect families interested in participating in studies with researchers who are actively recruiting participants.
Find out how you can advance autism research by registering as a postmortem tissue donor. It Takes Brains is the registration site for Autism BrainNet, a collaboration between Autism Speaks and the Simons Foundation.
Interactive Autism Network (IAN) is an innovative online project designed to accelerate the pace of autism research by allowing parents to report information about their child's diagnosis, behavior, environment, services received, as well as progress over time.
The Bloorview Research Institute is conducting need-based and ground breaking health research. There are many opportunities for research participation in our ongoing studies.
These are two studies (running concurrently) that broadly investigate how children with autism mentally represent the bodies and actions of others. We are investigating these processes in children with autism spectrum disorders as they may play a part in how individuals with autism learn from and communicate with others.
Currently, there are spaces left to enroll in two intervention programs that are aimed to promote mental health in young people with High Functioning Autism Spectrum Disorder and Asperger Syndrome.
Also a separate research study seeking your experiences with the police to create training materials for police and law enforcement professionals on how to better interact with people with developmental disabilities. (No previous involvement with police required to participate).