After Diagnosis

Now What?

This is a question asked by thousands of families each day all over the world after they hear the words “your child has autism”. Know that you are not alone. It is difficult to be fully prepared for a diagnosis of autism. It is likely and common that you will experience a range of emotions. Even though it is your child who has the diagnosis, it is important to acknowledge that autism “happens” to the whole family. It affects every member of the household and beyond. Many parents and family members will go through emotions and behaviours that are commonly associated with grieving – shock, sadness, anger, denial, loneliness and ultimately acceptance.

Give yourself time to adjust, be patient with yourself. It will take some time to understand your child’s autism and the impact it will have on you and your family. Difficult emotions may resurface from time to time. There may be times when you may feel helpless and angry that autism has resulted in a life that is much different than you had planned. But you will also experience feelings of hope as your child begins to make progress.

With a diagnosis of autism, early intervention is critical to gain maximum benefit from existing therapies. Although parents may have concerns about labeling a toddler as “autistic,” the earlier the diagnosis is made, the earlier interventions can begin. Currently, there are no effective means to prevent autism, no fully effective treatments, and no cure. Research indicates, however, that early intervention in an appropriate educational setting for at least two years during the preschool years can result in significant improvements for many young children with autism spectrum disorders. As soon as autism is diagnosed, early intervention instruction should begin. Effective programs focus on developing communication, social, and cognitive skills.

To learn more about accessing services and supports, please click here

First 100 Days Kit

The Autism Speaks 100 Day Kit was created specifically for newly diagnosed families, to make the best possible use of the 100 days following the diagnosis of autism.

It is a priority of Autism Speaks Canada to make the necessary changes to this kit so that it is more tailored to the needs of Canadian families. Until that time, we encourage you to download the PDF version of the kit, as many sections contain information that is universal to families, no matter where you live.

The kit contains autism information from experts, as well as parents of children with autism. The kit includes how to begin meeting your child's needs, a week by week action plan for the next 100 days, and much more helpful information when you are just getting started.

Sections of the 100 Day Tool Kit

About Autism
You, Your Family & Autism
Getting Your Child Services
Treating Autism
Making It Happen
Action Plan for the Next 100 Days
Autism Safety Kit
Useful Forms
Glossary
Your Local Resources

� To download, click here